Myeloma UK poll shows treatment information ‘held back’ from myeloma patients One in four doctors choose not to discuss life extending cancer treatments that are awaiting NICE (National Institute for Clinical Excellence) approval with their myeloma patients. more>> Velcade Three organise Downing Street PetitionThe Velcade Three have set up a Downing Street petition calling for the government to ensure that all myeloma patients get the treatment and care they deserve. The Velcade Three, otherwise known as Jacky Pickles, Janice Wrigglesworth and Marie Morton are myeloma patients from Yorkshire. They have campaigned for several years for access to Velcade on the NHS for all who need it. Their efforts have been widely reported in local and national media. You can sign the petition by going to the Downing Street website For more information about the Velcade Three Maureen Lipman fronts Myeloma Infoline poster campaignMyeloma UK honorary patron, Maureen Lipman CBE, is fronting our I wish I knew campaign to promote the free Myeloma Infoline service. Posters will be displayed in GP surgeries, hospitals, local community and health centres across the country. more>> International myeloma experts to present at London Patient and Family Myeloma Infoday on Saturday 4 OctoberThis year our annual London Patient and Family Myeloma Infoday will include talks from several world experts in the field of myeloma. more>> register online>> 2008 Raffle for Research tickets now on saleTickets for our 2008 Raffle for Research are now on sale. Don’t miss your chance to win some amazing prizes: 1st prize: £500 John Lewis vouchers 2nd prize: £250 Shoe Studio vouchers 3rd prize: 19” LCD TV 4th prize: £100 Sainsbury’s vouchers
Six lucky runner-ups will receive a bottle of fine champagne. All proceeds from the raffle will go to support our innovative research programmes. To buy or sell tickets, please contact fundraising@myeloma.org.uk. Thank you and good luck! Walk for a cure, and enjoy some retail therapyWhat are you doing on Sunday 21 September? Why not join us on a six-mile sponsored walk-and-shop through one of London’s most exclusive shopping areas, and raise money to help myeloma patients? more>>
Pitfalls of NHS ‘exceptional case’ funding is aired in ParliamentDr Ian Gibson MP made special mention of Myeloma UK in parliamentary debate on exceptional case funding. more>> Awareness Week 2008Thank you to everyone who took part in our 2008 Myeloma Awareness Week. Over 3,000 posters and 5,000 Myeloma Infoline postcards were distributed during the week and many articles were featured in local media. Money is still coming in, but we expect to raise in excess of £50,000. To read more about the events that took place around the country and to see how you can take part next year, visit 2008 Awareness Week. Myeloma UK is official charity at 2009 Edinburgh MarathonWe are thrilled to announce that we are an official charity for the 2009 Edinburgh Marathon. more>> |