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In addition to the general information available in the Myeloma Infopack and Infosheets there are a number of more specific in-depth guides available.
Our Infoguides are written for patients who have been diagnosed with myeloma. They will also be helpful for their families and friends. They provide further information on a range of topics relating to myeloma, its treatment and management.
To order your free copy of any of these Infoguides please call the Myeloma Infoline on 0800 980 3332
or email myelomauk@myeloma.org.uk
All of the Infoguides are available to download as a PDF, so you can read them on your screen or print them out.
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Myeloma Infoguides
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Myeloma - An Introduction
Provides a very brief overview of myeloma and is particularly useful for patients seeking information for the first time and to give to family and friends.
Download Myeloma - An Introduction
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Myeloma - Your Essential Guide
Gives a general overview of what myeloma is, how it is diagnosed, how it affects the body and gives an insight into the most commonly used treatments. It aims to help you understand the disease and make informed decisions about your care and treatment options should you wish to do so.
Download Myeloma - Your Essential Guide
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Living with Myeloma - Your Essential Guide
Provides an overview of many of the challenges you may have to cope with in living with myeloma. It discusses the emotional impact that a diagnosis of myeloma can bring and how to cope with many of the issues it raises. It also offers some practical advice and outlines things, both as a patient or relative, you can do to help yourself.
Download Living with Myeloma - Your Essential Guide
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Balloon Kyphoplasty
Balloon kyphoplasty is a relatively new procedure for the treatment vertebral compression fractures. This Infoguide explains what balloon kyphoplasty is, how it is used in myeloma, who might benefit from it and what to expect from the procedure.
Download Balloon Kyphoplasty Infoguide
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Bone Disease and Bisphosphonates
Gives an insight into what myeloma bone disease is and why it may occur. It describes how bone disease is detected, monitored and treated. It also contains information on the medical and non-medical treatments to manage the pain associated with bone disease.
Download Bone Disease and Bisphosphonates Infoguide
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Chemotherapy and myeloma
This Infoguide explains chemotherapy treatment for myeloma. It covers what chemotherapy is, how it is used, what side effects you might have and how to manage while on treatment.
Download Chemotherapy and myeloma Infoguide
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Clinical Studies
This Infoguide provides background information on the important role that clinical studies play in improving myeloma treatment and care. It raises important issues to think about when you are deciding whether or not to take part in a clinical study.
Download the Clinical Studies Infoguide
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High-Dose Therapy and Stem Cell Transplantation
High-dose therapy and stem cell transplantation is a treatment option for many myeloma patients. This Infoguide explains what it is, why it is needed, and the potential advantages and disadvantages of this treatment.It also discusses what will happen during the procedure, what to expect during the recovery process and the physical and emotional impact of such an intensive treatment.
Download High-Dose Therapy and Stem Cell Transplantation Infoguide
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The Myeloma X Relapse (Intensive) Study
Provides detailed information about the UK-wide Myeloma X Relapse (Intensive) Study. The purpose of this clinical study is to determine the role of a second autologous stem cell transplant in patients whose myeloma has come back (relapsed) following their first autologous stem cell transplant. This Infoguide aims to provide answers to the questions you might have and help you understand what is involved if you decide to take part in the study.
Download The Myeloma X Relapse (Intensive) Study Infoguide
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Revlimid
Revlimid ® (lenalidomide) is a relatively new type of myeloma treatment, which is chemically similar to thalidomide. This Infoguide reviews what Revlimid is, how it works, when it is used in myeloma, how to access treatment and what to expect from treatment.
Download Revlimid Infoguide
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Serum Free Light Chain Assay
Reviews a relatively new blood test which is now increasingly used to monitor patients with AL amyloidosis, non-secretory myeloma and Bence Jones myeloma. It may also prove useful in monitoring MGUS patients, as well as to measure early response to treatment and enable early detection of relapse in other myeloma patients
Download Serum Free Light Chain Assay Infoguide
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Thalidomide
Reviews what thalidomide is, its history and its recent use in the treatment of myeloma. It looks at how thalidomide is used, what to expect from treatment, management of potential side-effects and how thalidomide is prescribed, stored and used safely.
Download Thalidomide Infoguide
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Velcade
Velcade ® (bortezomib) is a relatively new type of myeloma treatment. This Infoguide reviews how Velcade works, when it is used in myeloma, what to expect from treatment, which potential side-effects may occur and what can be done to manage them.
Download Velcade Infoguide
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If you have specific questions about any aspect of myeloma, its treatment and management please call the Myeloma Infoline on 0800 980 3332 or email Ask the Nurse.
All Infoguides are regularly revised and updated, and new ones introduced.
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