Raising awarenessAccording to a recent survey conducted by Myeloma UK, awareness of myeloma throughout the UK is very low. When questioned, a staggering 97% of people could not correctly identify the disease. The survey also found that over a third of those interviewed wrongly thought that myeloma was a skin cancer, with a national average of 38% and highs of 45% in the Outer South East and a low of 16% in Wales. Participate in Myeloma Awareness Week – 21-28 June 2008Get involved in the 2008 Myeloma Awareness Week and make a big difference. From doing a ‘Mile for Myeloma’, to wearing something orange, you can do your bit to raise awareness and funds for myeloma. Visit our Awareness Week 08 pages for more informatin and to order your free Awareness Week Pack now. Ways to raise awareness of myeloma throughout the yearThere are plenty of things that you can do to help raise awareness of myeloma. With 97% of the population knowing nothing about it, there are a lot of people out there who you can tell a bit about myeloma. You can:  Call us on 0131 557 3332 to order some of our special awareness raising posters to display around your local community
Help raise awareness of our Myeloma Infoline, so that others affected by myeloma can find out about our services and access information and support. We can send you Infoline cards to distribute Call us to request an Infoline poster to display in your local GP’s surgery, or hospital waiting room Hand out ‘Did you know?’ cards to your friends and family Hold a fundraising event to raise awareness of myeloma and vital funds to support our patient information services - for details of how to get started, visit our fundraising pages Write to your local newspaper, with your personal story about myeloma to see if you can persuade them to write about it Become a Media Case StudyNewspaper and magazine articles are a great way of telling people more about myeloma - and real-life patient/carer stories are always particularly well read. It is of great value to other people in a similar position to be able to hear or read first-hand accounts of different aspects of life with myeloma. We are looking for patients who would be willing to tell their story through the media to help us raise awareness of: Living with myeloma The different types of treatment and prodecures involved in myeloma Access to new cancer treatments for myeloma Delay in diagnosis Living with anaemia and fatigue The importance of nursing staff in myeloma If you are willing to consider being a media case study, call or email Sara at Myeloma UK to find out more about what’s involved sara@myeloma.org.uk 0131 557 3332. 
Page updated 16 June 2008
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