Myeloma UK is the only organisation in the UK dealing exclusively with myeloma – our ultimate goal is to find a cure.
Patients come first in everything we do, and we are dedicated to ensuring that myeloma patients live longer and with the best possible quality of life.
We are committed to:
- Being collaborative and results driven with a focus on investing in patient centred research
- Improving standards of treatment and care through education and raising awareness
- Working with industry and decision-makers to ensure that patients get access to the right treatment at the right time
- Providing a range of information and support services to patients, family and friends to help them deal with everything a myeloma diagnosis brings
We receive no Government funding and rely almost entirely on voluntary donations and fundraising. In short, we couldn’t do what we do without your support.
What we do
Every year 5,500 new cases of myeloma are diagnosed in the UK – that’s 15 every day.
Our ultimate goal is to find a cure for myeloma, but until that time we will continue to invest in improving standards of treatment and care through research, education and awareness raising.
We direct investment into strategic research that offers the best chance of significantly improving outcomes for myeloma patients, and fund research from the laboratory bed to the patient’s bedside.
Our Patient Advocacy Team collaborates with patients, doctors, the Government, NHS and the pharmaceutical industry to influence UK health policy and enable timely access to new treatments for myeloma patients.
PATIENT INFORMATION AND SUPPORT
Our Services Team ensures that patients have access to the best possible information and support to help them come to terms with their diagnosis, and make informed decisions about their treatment, care and personal life.
Our values underpin our work and like patients, are at the heart of everything we do.
We are COLLABORATIVE
We form strategic collaborations to push forward progress in myeloma research, treatment and care, recognising that the challenging complexity of myeloma requires partnerships and co-ordination.
We are COMPASSIONATE
We take a caring and understanding approach to supporting patients and their families whenever they need us.
We strive for EXCELLENCE
We deliver quality and excellence in everything we do for patients and their families.
We are INNOVATIVE
We have a pioneering, problem-solving approach that enables us to maximise opportunities and overcome barriers through innovative ways of working.
We are PASSIONATE
We believe in what we do and we work tirelessly so that one day a cure will be found for myeloma.
We are PATIENT-CENTRED
We put patients at the heart of our work. We deliver programmes, services and research that meet the needs of everyone affected by myeloma.
We value OUR PEOPLE
We value the contribution our colleagues make to the great work that we do and are committed to equality and diversity amongst our team.