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Finances (AL amyloidosis) Infosheet

This Infosheet provides information on some of the potential financial challenges you may encounter as an AL amyloidosis patient and provides resources for further help, including information on what benefits and allowances may be available to you.

It is not possible to know exactly what will happen in the future and how it will affect you or your finances but taking sensible precautions and planning for a number of eventualities can help you alleviate some financial worry.

There are a number of things you should consider when assessing your situation and the infosheet provides detail around:

  • Work (reducing hours and managing on lower income)
  • Pensions
  • Mortgages
  • Budgeting
  • Debt
  • Viatical settlement or living benefit
  • Updating/drawing a will

There are a number of different benefits and tax credits you may be able to claim:

  • Personal Independence Payment (PIP)
  • Attendance Allowance (AA)
  • Statutory Sick Pay (SSP)
  • Employment and Support Allowance (ESA)
  • Carer’s Allowance
  • Working Tax Credit
  • Universal Credit

You may also be entitled to the Blue Badge scheme, Winter Fuel Payments. The infosheet gives contact details for further information on these as well as other organisations that can advise.

It may be helpful to discuss your finances with an independent financial adviser.