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Mouth care (AL amyloidosis) Infosheet

This Infosheet explains the causes of mouth problems in AL amyloidosis patients, what to look out for, treatments available and tips for self-management.

Good mouth care is always important to help ensure your mouth is kept clean, moist and free from infection. When you have AL amyloidosis it is essential to be extra vigilant with your mouth care as you may be more prone to a variety of problems including a sore or inflamed mouth, infections, bleeding gums and a dry mouth.

This Infosheet explains the causes of mouth problems in AL amyloidosis patients, what to look out for, treatments available and tips for self-management.

Amyloidosis itself can cause enlargement and tenderness of the tongue, known as macroglossia, causing difficulty in eating or talking.

Weakened immune system means you are more likely to pick up an infection.

Side effects of chemotherapy treatment include inflammation or ulceration of the lining of the mouth known as oral
mucositis.

It is a good idea to get into the habit of inspecting your mouth every day so that you can detect any visible changes.

The infosheet lists some recognisable signs and symptoms of mouth problems.

As well as available treatments and self management strategies.