Pain and myeloma Infoguide

This Infoguide aims to help you understand what pain is, the different types of pain and causes of pain in myeloma patients. 

Pain is the most common symptom of myeloma affecting up to 80% of patients at some point. It is a sensation which causes discomfort or distress and is often a signal that the body is dealing with an injury or illness.

Pain not only affects the body, but it also has a significant psychological impact and affects how you feel emotionally. In particular, chronic pain can cause frustration, anxiety, anger, fear, poor concentration and sleep deprivation. In turn, these can affect not only how you cope with pain but affect the level of pain you have and how you deal with other aspects of life.

Pain can be a result of the myeloma itself or it can be caused by side-effects of treatment.

The infosheet describes some of the most common causes of pain in myeloma and may help you to identify and describe any pain that you may have:

  • Myeloma bone disease
  • Peripheral neuropathy
  • Infection
  • Fatigue
  • Side-effects of anti-myeloma treatments
  • Pain due to tests, investigations and procedures
  • Blood tests
  • Hickman® line
  • Bone marrow tests
  • Radiotherapy

In order for your doctor or nurse to treat your pain effectively, it is extremely important that you are honest about
the level of pain you have and the impact it is having on your life. The infosheet offers guidance as to how to describe your pain.

The aim of any pain relieving treatment is to provide continuous pain relief, whenever possible, with minimal
side-effects. Myeloma-related pain is often relieved by treatment of the myeloma itself and a response to treatment is a major factor in reducing pain and improving quality of life. There are a number of medical and non-medical treatments covered within the infosheet.