Welcome to the Myeloma Discussion Forum

Please register or log in to post messages in the discussion forum.

The Myeloma Discussion Forum aims to provide you with a way to maintain regular contact with others, relieve feelings of isolation, share experiences, chat about day-to-day challenges and learn more about myeloma.

more information/terms and conditions

This is a moderated Discussion Forum, which means Myeloma UK staff are on hand to provide guidance and answers to difficult queries that arise in the Forum.

The Discussion Forum is available to all those affected by myeloma and its related conditions: patients, family members, carers and healthcare professionals. Everyone’s contribution is welcomed and encouraged; the more people participate the more everyone will get out of the Forum.

Please note that any posts you make to the Discussion Forum are public.

We ask that you view our Forum guidelines and registration terms before contributing to the Myeloma Discussion Forum.

If you have any problems accessing the Myeloma Discussion Forum, or any issues concerning the content of any posts or the service in general, please contact the Myeloma UK Infoline on 0800 980 3332 or email webteam@myeloma.org.uk.

Home › How we can help › Meet others › Forums

    • Forum
    •  Latest post
    •  
    • Topics
    • Posts
    • Newcomers
    • Reply To: New to the Forum

      Hi Maureen Thank you for your post, it is encouraging to hear from you, as you say “one day at a time’ there is so much to do but one gets very frightened to make future commitments at th…

    • 1 day, 10 hours ago

      Profile photo of Richard George stjohn

    • 578
    • 6,794
    • General
    • Reply To: Travel Insurance – Europe EHIC Card

      Hi Annette I am sorry to ear about the Leukaemia – I noted that a lot of the chemo treatment can cause secondary cancers – its a head-full to take in when it comes to treatments, my other…

    • 2 weeks, 5 days ago

      Profile photo of Sabrina Brotherston sabs

    • 987
    • 10,338
    • Treatment
    • Reply To: VPM

      C & Gregg Thank you so much for your replies. I shall be phoning the info nurse about my having am extra week break. I don’t see it can make a lot of difference. My PP’s are down to 1…

    • 1 day, 7 hours ago

      Profile photo of susie susie

    • 749
    • 9,325
    • Side-effects
    • Hair Loss

      I was diagnosed with MM in May and I started treatment 3 days after I was told. I had no symptoms apart from a slightly off blood result when I had a well woman check. Very shortly afterwards I had a…

    • 11 hours, 52 minutes ago

      Profile photo of Denise Brown deniseb451

    • 253
    • 2,409
    • Related conditions
    • Reply To: poor kidney function

      Hi Maureen A really worrying time for both of you. What were Ian’s light chains when he was originally diagnosed? I just wondered whether they were higher than 5000? I would certainly try to …

    • 2 weeks, 1 day ago

      Profile photo of Jan Walker Jan Walker

    • 42
    • 390
    • Smouldering myeloma / MGUS
    • Reply To: Newly Diagnosed MGUS

      I started with frequent tests like every 3 months and slowly stretched them out to once a year and more and continued playing hockey for another 15 years.  I try to not think at all about an MGUS di…

    • 3 weeks, 4 days ago

      Profile photo of Stan <Meagre Stan <Meagre

    • 44
    • 370
    • AL amyloidosis
    • New AL amyloidosis videos on Myeloma TV

      I am pleased to announce that we have four new AL amyloidosis videos available on Myeloma TV. These are short (3 – 5 minute) films, each focussing on one of the following four topics: An overvi…

    • 2 months, 3 weeks ago

      Profile photo of shallahan shallahan

    • 19
    • 77
    • Carers
    • Reply To: Myeloma & ARMD (Age Related Macular Degenertation)

      Thank you for posting on the Myeloma UK discussion forum.  My name is Debbie and I am one of the Myeloma Information Specialists here at Myeloma UK. As far as we are aware there is no connection bet…

    • 9 months ago

      Profile photo of Debbie Gardiner debbieg

    • 101
    • 1,113
    • Under 50s
    • Reply To: SCT

      Thought I’d share some good news – hubby’s PP is now down to 2 after 3 rounds of VDT and he’s been cleared for his SCT after round 4,  which he started yesterday.  We’…

    • 18 hours, 19 minutes ago

      Profile photo of Farmers wife Claire Farmers wife Claire

    • 65
    • 799
    • Off topic
    • Survey

      We have been asked to make you aware of a survey developed by Susan who is a final year student at the University of Buckingham. She is doing research on stress management by use of mindfulness, reli…

    • 1 week, 5 days ago

      Profile photo of Ellen Watters Ellen Watters

    • 345
    • 2,846

  •