Autonomic neuropathy (AL amyloidosis) Infosheet

This Infosheet explains what autonomic neuropathy is and what causes it in AL amyloidosis patients. It also explains how it is managed and some tips for self-management.

This Infosheet covers key questions and topics about autonomic neuropathy in AL amyloidosis, including:

• What is autonomic neuropathy?
• What nerves are affected in autonomic neuropathy?
• What are the symptoms of autonomic neuropathy?
• What causes autonomic neuropathy in AL amyloidosis?
• Tips for self-management

Key points you can read about in this Infosheet include:

• Autonomic neuropathy is damage to the nerves that control bodily functions such as heart rate and digestion
• Symptoms vary depending on the nerves that are affected but may include: nausea and vomiting when eating, or dizziness when standing
• Autonomic neuropathy is caused by an abnormal protein, called amyloid, depositing around the autonomic nerves. This interferes with the signals the nerves send
• Management is focused on treating the AL amyloidosis and existing symptoms are managed to improve quality of life
• There are things you can do to make living with autonomic neuropathy manageable, such as taking your time when standing up, avoiding excessive heat and speaking to a dietitian

AL amyloidosis Autonomic Neuropathy Infosheet

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