AL amyloidosis Benefits and financial support Infosheet

This Infosheet provides information about some of the potential financial challenges you may encounter as an AL amyloidosis patient and resources that may help, including benefits and allowances that may be available to you. This Infosheet covers key topics about managing financial circumstances when living with AL amyloidosis, such as:

• Work
• Pensions
• Mortgage
• Energy bills
• Budgeting
• Debt
• Benefits and tax credits
• Wills

Key points you can read about in this Infosheet include:

• AL amyloidosis affects different people in different ways. This means that some people may be able to continue working whilst other people find they can not
• If your job involves a lot of physical activity and/or manual labour, you are likely to find it more difficult to continue working
• There may be some changes to your working circumstances, called ‘reasonable adjustments’, that your employer can make. These can make it easier to keep working
• If you are considering early retirement on grounds of ill health, you should discuss this with your doctor, pension provider and HR department at work
• If you are struggling to keep up with mortgage costs and energy bills, talking to the mortgage company and/or energy companies about your circumstances can help. Sometimes they are able to temporarily freeze or reduce some costs
• Budgeting can help you manage your finances and help you stay out of debt
• It is important that you do not cut costs that affect your health
• If you are in debt, it is important to get help as soon as possible. There are organisations that can help you try to gain control of your finances
• There are a wide range of benefits and tax credits which you may be able to apply for. There are a number of different factors that can affect eligibility and these are different for different benefits
• There is a list of useful organisations that can help you to manage your financial circumstances on pages 15-17 of this Infosheet

AL amyloidosis Benefits and financial support Infosheet

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