Benefits and financial support (AL amyloidosis) Infosheet

This Infosheet provides information about some of the potential financial challenges you may encounter as an AL amyloidosis patient. The Infosheet includes resources that may help, such as benefits and allowances that may be available to you.

This Infosheet covers key topics about managing financial circumstances when living with AL amyloidosis, such as:

• The different benefits and credits you may be entitled to
• Personal circumstances that may be considered when working out which benefits you can claim
• How to manage your budget and handle debt when living with AL amyloidosis
• Guidance on preparing your will
• Information on different pensions available
• A list of trusted organisations that offer free financial advice
• Where you can find other sources of useful information

Key points you can read about in this Infosheet include:

• AL amyloidosis affects different people in different ways. This means that some people may be able to continue working whilst other people find they can not
• If your job involves a lot of physical activity or manual labour, you are likely to find it more difficult to continue working
• There may be some changes to your working circumstances, called ‘reasonable adjustments’, that your employer can make. These can make it easier to keep working
• If you are considering early retirement on grounds of ill health, you should discuss this with your doctor, pension provider and HR department at work
• If you are struggling to keep up with mortgage costs and energy bills, talking to the mortgage company and/or energy companies about your circumstances can help. Sometimes they are able to temporarily freeze or reduce some costs
• Budgeting can help you manage your finances and help you stay out of debt
• It is important that you do not cut costs that affect your health
• If you are in debt, it is important to get help as soon as possible. There are organisations that can help you try to gain control of your finances
• Factors such as your age, where you live, household income, and savings can affect the benefits you may be entitled to

Benefits and financial support (AL amyloidosis) Infosheet

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