Knowledge is power: tackling myeloma inequalities in Black communities

Black communities in the UK are two to three times more likely to develop myeloma than white populations and are diagnosed at younger ages. Despite this elevated risk, these communities face systemic barriers: delayed diagnoses, underrepresentation in clinical trials, limited culturally relevant information, and poorer treatment outcomes.

Myeloma UK recognises the disproportionate challenges faced by Black communities and sought to build a deeper understanding of these experiences, while contributing to meaningful improvements in awareness of myeloma. To support this work, we partnered with the Race Equality Foundation, a specialist organisation with expertise in health inequalities. Together, we delivered a project focused on understanding the issues facing Black people affected by myeloma and raising awareness of the condition.

This report presents the culmination of our research, engagement activity and the invaluable contributions of our co-production group. It brings together the insights, experiences and evidence gathered throughout the project, translating them into a set of recommendations and our clear commitment to action.

Knowledge is power – Tackling health inequalities

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