Being diagnosed with myeloma can have a knock-on effect on those around you. How myeloma affects those you care about most can bring new challenges.

A myeloma diagnosis affects many people, not just the person diagnosed. It can bring significant changes to your relationships – with your partner, your children, other family and friends. Each relationship is unique and myeloma will affect them differently – however, changes in roles are common. Building a support network is vital and your relationships with those around you can bring comfort and joy, especially during difficult periods.

Telling loved ones about your diagnosis

How and when you tell your loved ones about your diagnosis is up to you – there’s no right or wrong way to do so.

Although you may find it scary or hard to talk about what is happening to you, sharing your news can help bring people together and provide the all-important support you’ll need to live well with myeloma.

It can help to think about how you’d like to do it in advance and what would be best for you.  How you talk to people about your myeloma will depend very much on your personality and how you usually talk to the people around you.

It might help to have some information you can give or signpost those close to you to so they can read more in their own time and you don’t need to repeat yourself. Our Myeloma – An introduction booklet can be a good place to start.

Read more in our Infopack for newly diagnosed myeloma patients.

“Just take some time to take in the diagnosis, talk with your partner and family and spend some time discussing things with your specialist nurse and consultant. If you feel you need more psychological help, ask for it.” – Dave, myeloma patient

Relationships with family

Coping with the changes in your relationship can be difficult. Feelings of loss and sadness are common, as well as anger and guilt. However, talking to your family and friends will help bring an understanding of how you are all feeling and what your needs are.

Often, myeloma can bring positive changes to relationships. It may give you a shared focus and help you reassess what’s important. You may have an increased desire to spend quality time with your family and friends which can strengthen relationships.

Talking about myeloma with children

Discussing myeloma with children can be particularly hard and it’s natural to want to protect them from sad news. Our children’s book, Kelsey and the Yellow Kite, is written in a child-friendly way and tells the story of a girl whose dad is diagnosed with myeloma.

This can help children understand what’s likely to happen and help them comes to terms with it in their own way. Order or download a copy from our information hub now.

Close-up photograph of a hand holding a mobile phone.

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