Myeloma UK has had another successful year of Infodays, with 12 events held across the UK and over 1,250 people attending. 2017 also saw the very first Carer and Family Infoday in Newcastle, the first event of its kind.
Caregivers, family and friends of myeloma patients were invited to join the inaugural Myeloma UK Carer and Family Infoday in Newcastle at the end of June 2017. A total of 42 attendees came together to share their experiences of living with or caring for someone with myeloma.
Not only did the event provide a safe space for caregivers, family and friends to discuss all aspects of their relationship with myeloma, it also provided them with information of how Myeloma UK can help them and not just patients. There were a variety of interesting discussions and informative presentations with talks on the psychological impact of caring, how to get help and support in your caring role, legal considerations, financial support and planning ahead. Attendees also had lots of opportunities to meet others, network and share experiences.
One caregiver who attended the Carer and Family Infoday said, “I really welcomed the day. It was like coming out of a closet. It was so helpful to meet separately from my partner. It allowed me to acknowledge my role as carer.
“I have found myself in a role I never imagined. I would welcome any more events like this in the future. Thank you for the valuable work you and your team did to make it such a success.”
Hannah Bingham, Services Events Lead, Myeloma UK said, “We are so happy that our first Carer and Family Infoday was such a success. The feedback we have received from attendees has been fantastic and has shown a need for these kinds of events.
“When a loved one is diagnosed with myeloma, it can be a stressful time for family and friends, with strains on mental and physical health. We want to be able to provide as much information and support to caregivers as possible. We hope to hold more events like this is the future to allow caregivers, family and friends to meet, find out more about myeloma and how Myeloma UK can help them.”
The Patient and Family Myeloma Infodays also returned to Liverpool for the first time in five years. One attendee said, “It was a wonderful day; reassuring, motivating and I came away feeling more positive and informed. Thank you to everyone involved for making it such an inspiring day.”
The Myeloma UK team would like to say a big thank you to patients, family members, friends and carers who attended this year as well as all the healthcare professionals who participated and patients who shared their stories.
All of the slides from this year’s Infodays can be found here.
Dates for the 2018 Infoday will be released early in the New Year. If you would like more information on any of our Infodays please email us at firstname.lastname@example.org.