Living well with myeloma: spotlight on living alone

Living alone with myeloma can be difficult, but there are many support services available for patients.

Myeloma UK news, Other News // 25th July 2018

Receiving a myeloma diagnosis can give you a sense of isolation, as well as cause physical and financial strains, some of which may be amplified if you live alone. However, it’s important to remember that there are a range of support services available to patients to help them through a myeloma diagnosis.

Finding people to talk to

Finding ways to cope with your emotions and daily life is very important. Reaching out to family and friends can make you feel better and also help them understand how they can best help you.

It can be helpful to speak to other patients as you can share experiences and ask questions. Myeloma Support Groups can be a great way to meet fellow patients and find safe, welcoming environments to talk about how you are feeling.

If you find attending a Support Group difficult or daunting, Myeloma UK also provides a number of options to connect you with people from the comfort of your own home. For example, you may find speaking to other patients via the Myeloma UK Discussion Forum helpful.

The Myeloma PEER (Patient Experience Exchange Resource) Network is another option for those looking to speak to someone who has been through what they’re going through. The PEER Network is made up of friendly myeloma patients, family members and carers who can offer advice and answer questions. You can find out more about the PEER Network by calling the Myeloma Infoline.

You can also call the Myeloma Infoline to speak to one of our Myeloma Information Specialists. They are on hand to answer any questions you may have from Monday to Friday, 9am to 5pm. Call them on 0800 980 3332 for a confidential chat about anything that might be on your mind.

Self care

As well as sharing experiences with other myeloma patients, you may find hobbies to be a welcome distraction and make you feel more like yourself. Joining classes or groups can provide time for socialising, meeting new people and even learning something new.

Watch Roger talk about dealing with pain and how he re-discovered the cello.

Managing responsibilities

Living alone means that many of the household responsibilities fall solely on you; this includes cooking, chores and finances. Planning ahead is very important and will help you to manage these responsibilities and get any support you need.

Personal finances can be impacted by a myeloma diagnosis. We have a dedicated Infosheet which highlights the benefits you might be entitled to. Our new Infopack for living well with myeloma also contains a section on finances, as well as many other topics to help you live well with myeloma.

For more information about living well with myeloma when living alone, download our Infopack for living well with myeloma.

Infopack for living well with myeloma