Myeloma UK has launched a new Infopack to provide relapsed and/or refractory patients and their families with the information they need when myeloma returns.
A myeloma patient becomes relapsed and/or refractory when their myeloma comes back following or during treatment.
Patient Information Specialist Jude Leitch says, “When myeloma returns it can be a particularly difficult time for patients and their families. A relapse or becoming refractory to treatment may come as less of a shock than the initial diagnosis, but it can be just as challenging and raise its own set of question and concerns.
“We have pulled together the most important information for relapsed and/or refractory patients and covered answers to some of the most common questions these patients have asked us in the past.”
What does the Infopack cover?
The Infopack aims to help patients and their families come to terms with a relapse or being refractory to treatment, and includes information on:
- Why does myeloma relapse?
- How will I/my doctor know I have relapsed?
- Do I need to start treatment straight away at relapse?
- Will I have the same treatment I had following my diagnosis?
- Why does myeloma become refractory to treatment?
- Will new treatment make my existing side-effects worse?
- How well will the new treatment work?
- How many relapses will I have?
How can I order this Infopack?
There are a number of ways to receive a copy of our new Infopack:
- Call 0800 980 3332 or email AskTheNurse@myeloma.org.uk to request a copy
- Order a paper copy
- Download a copy of the Infopack
This Infopack is the latest publication for patients created by Myeloma UK. Other useful resources for relapsed and/or refractory patients include Patient and Family Myeloma Infodays, Support Groups and the Myeloma Discussion Forum.