Myeloma UK Patient Information is awarded quality mark

Myeloma UK has recently had their Patient Information certified by The Information Standard, a health and care certification programme supported by NHS England.

Myeloma UK news, Patient advocacy news // 6th December 2017

Myeloma UK has recently had their Patient Information certified by The Information Standard, a health and care certification programme supported by NHS England. The accreditation signifies that the information provided by Myeloma UK is reliable, accurate and of high quality.

Following a rigorous assessment of its information production processes, Myeloma UK met the programme’s certification criteria and will, therefore, be able to display The Information Standard quality mark on its publications.

Alice Baron, Patient Information Officer, Myeloma UK said, “Many people will not have heard of myeloma before receiving their diagnosis, so it’s normal for people to look for information about it. In what is often already a difficult situation, inaccurate and unreliable information can be all the more scary and confusing.

 

Many people will not have heard of myeloma before receiving their diagnosis, so it’s normal for people to look for information about it. In what is often already a difficult situation, inaccurate and unreliable information can be all the more scary and confusing.

Alice Baron, Patient Information Officer, Myeloma UK

“By achieving The Information Standard certification, we can help patients recognise that the information we provide is accurate and trustworthy.

“The Patient Information team works hard to ensure that we are providing the right information to patients about all aspects of their diagnosis. We are delighted to receive this official certification from The Information Standard.”

In a survey* conducted by The Information Standard, they found that almost half of those surveyed had believed a piece of health information that they later found to be inaccurate. Eight in 10 people also felt that if you are not a health professional, it’s easy to be misled by public health information.

Ann Robinson, director of public awareness for The Information Standard, commented: “With so much information available now, it is vital the public be able to differentiate between information that is and isn’t trustworthy.

“This is why The Information Standard was established, with its easy to spot quality mark, the public just needs to check the mark is on the leaflet or website they’re reading to know that the health information produced by that organisation can be relied upon. It is great therefore that Myeloma UK has become the latest member of the programme and has been recognised as being a trustworthy source of information.”

All of the Patient Information available from Myeloma UK is available to view and download from our Publications list.

*The survey of 2000 people across England was conducted by The Information Standard in March 2012.