Myeloma UK news, Other News // 11th September 2019
The BMA Patient Information Awards recognise excellence in the production and dissemination of accessible, well-designed and clinically balanced patient information.
This is the fifth consecutive year Myeloma UK patient information has been recognised in these prestigious awards. Previously Highly Commended publications include Kelsey and the Yellow Kite, Infopack for carers of myeloma patients, and Planning ahead: An Infopack for myeloma patients. Last year, the Easy Read booklet ‘How is myeloma treated?’ was the winner of the special award for Easy Read.
In this year’s awards, the Infopack for living well with myeloma was the Runner Up in the Well-being Award, as well as being Highly Commended. This Infopack, which is suitable for all myeloma patients, provides information and tips about how to live day to day with myeloma. It includes information about coping with symptoms and side effects of myeloma and its treatment; emotional effects of myeloma; changes that may occur to your relationships, sex life and fertility; diet, exercise, finances and travel; and living alone with myeloma.
Reviewer of the Infopack for living well with myeloma, Joel Newman, haematology consultant, said,
“This is an excellent resource. Well-researched and covering all the relevant topics in how to live your life well, when living with myeloma. It is readable, well-indexed, comprehensive, and well-presented in a spiral bound format. Highly recommended.”
In addition to the Infopack, the Treatment Guide series was Commended by the judges. The series of 13 mix-and-match Guides are designed to make it easier for healthcare teams to tailor the information to individual patients. This means that patients receive relevant and easy to understand information about their specific myeloma treatments.
Alice Baron, Patient Information Manager at Myeloma UK, said,
“I am very pleased that our publications have been recognised in the BMA Patient Information Awards for the fifth year in a row. These awards select the best of patient information and I’m delighted that our publications are among them. Myeloma patients face an incredibly difficult diagnosis and providing useful and accessible information is vital to help them live well. I hope patients and family members reading these publications find them as informative as the judges did.”