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Patients wanted for ground breaking RUDY study with University of Oxford

Launched this year, RUDY is a patient driven research study which aims to transform clinical care for participants.

Research news // 29th November 2018

RUDY, which stands for Rare and Undiagnosed Diseases Study, aims to improve the understanding of myeloma and other rare diseases through patient driven research. The project is currently being run by a research team at the University of Oxford and aims to collect information over a five year period.

The study has been co-developed with patients and is accessible online. It can also be completed by post. This means patients don’t have to take extra trips to the hospital. Over 120 myeloma patients have already signed up to take part in the study.

Not only does this research help to improve the clinical care of patients, it is also helping to push the UK to the top of myeloma research. The more patients who participate, the more successful the study will be by helping researchers to understand more about how myeloma affects people’s lives.

Because the study aims to collect information over a five year period, the team want to make patient involvement as simple and flexible as possible. You can decide what parts of the study you want to be a part of, and how you would like to be contacted. Participants also have the option to change their involvement and communication preferences at any time.

The study is open for people with myeloma and smouldering myeloma at any stage to join but not those who only have MGUS. It is also open for people with few or no symptoms at present as well as those with more severe symptoms and complications.

If you would like to find out more or sign up to participate in this groundbreaking study, visit www.rudystudy.org. If you have already joined the study and would like to share your experiences with the research team, please contact them here: rudy@ndorms.ox.ac.uk.