Policy and public affairs

Giving a voice to myeloma patients. Working as partners to influence policy, engage with decision makers and improve patient access to treatment.

Patient Advocacy

Myeloma patients and their carers are our top priority. We press for access to new treatments which can help patients live longer and with a better quality of life, as well as acting as advocates for patients when dealing with decision makers, such as politicians or senior figures in the NHS.

Our work has helped deliver the highest increase in survival rates of any cancer in the UK.
Here are some of the ways we make your voice heard.

Delivering access to the best treatments

We work with patients, doctors, the pharmaceutical industry, and drug approval bodies like NICE, the Scottish Medicines Consortium and the All Wales Medicines Strategy Group (AWMSG) to make sure myeloma patients receive the best possible treatments. We make sure that our submissions to drug approval bodies are evidence based by working closely with our Health Services Research Programme.

Developing policy

When it comes to influencing policy, we are focused on the following key areas:

  • Improving diagnosis and reducing inequalities
  • Access to treatment
  • The pricing of medicines
  • NHS cancer strategies and commissioning
  • The myeloma research environment
  • “Real world” data from treatments and results

We produce papers and reports to help inform government strategy.

Using our voice

We take a collaborative approach and work with the myeloma community to bring about positive change. We seek out opportunities for myeloma patients to have their voices heard – from clinical trial design, or appearing in the media, to speaking directly to decision makers to deliver change. We also work in partnership with a vast range of other cancer charities as members of campaigning coalitions.

Myeloma Matters

Myeloma Matters

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Discussion Forum

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Help & Support: Speak to one of our trained and qualifed Myeloma Information Specialists or email us