Me and myeloma: Paula’s story
Our ‘Me and myeloma’ stories are a series of stories from the myeloma community.
I’m 59 and live in Devon with my husband of 35 years. I’m mum and carer to our two adult children who have additional needs. I enjoy running, hiking and reading.
What is your connection to myeloma?
My wonderful Dad was diagnosed with myeloma in 2015 and it sadly took his life in 2020.
What helps you get the support you need as a family member or carer?
Myeloma UK’s website has always been the best source of information for me. I also used the Ask the Nurse helpline when my Dad was in the final days of his life.
I have taken part in the Lost in Lapland 100K running challenge twice. The second time, I was interviewed on Radio Devon and in the local press and hope this has helped raise awareness of myeloma, which is vital, as well as funds.
I very much want to continue helping Myeloma UK in honour of my Dad. He fought very hard against this horrible disease. I hate myeloma for taking him away and I want to continue his fight and feel like I’m kicking it hard.
I believe supporting the work of Myeloma UK is the best hope for finding a cure.
What message or advice would you give to someone whose loved one has myeloma?
Your loved one having myeloma is like being on a rollercoaster. The highs of good blood results or remission, and the lows of treatment and relapses. It’s also very hard that so few people have heard of it, let alone understand it.
I would say try and take one day at a time, and make the most of the good days so that there’s something left in the tank for the less good days. And always have hope – new treatments are coming along all the time.
Do you have any advice for someone who is caring for someone with myeloma?
Remember how important it is to look after yourself and take some time for yourself, however hard that may seem. You’re no good to your loved one if you’re worn out.
Do get in touch with Myeloma UK for information and support – they really know their stuff and it makes you feel less alone.
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