Myeloma UK Chief Executive Blog – May 2018

May has been an exciting month for Myeloma UK as we reach the halfway point in our 21st Year activities.

Myeloma UK news, Other News // 30th May 2018

This month, our Chairman, Judy Dewinter, announced that she will be stepping down from the board in December after 12 years. On behalf of everyone at Myeloma UK I would like to thank Judy for all of her outstanding and inspirational work during her time as Chairman.

Judy will continue in an advisory and ambassadorial role as President of the organisation.

Marc Gordon, who has been on the board as Treasurer since 2012, will take her place, with both roles coming into effect on 1 January 2019.

I look forward to working with both of these exceptional individuals in their new roles to continue our commitments and deliver our strategy for the benefit of those affected by myeloma.

Rosemarie presented with Silver-gilt medal at Chelsea Flower Show 2018

We also opened The Myeloma UK Garden at this year’s RHS Chelsea Flower Show this month, bringing awareness to both this rare and incurable blood cancer and the charity. Months of hard work from numerous different people came together, with the design by John Everiss and Francesca Murrell earning a Silver-gilt medal.

It was fantastic to see so many people visiting the garden and learning about who we are. It was amazing to see so many patients, family and friends coming along to show their support.

A special thank you goes out to Peter King and his daughter, Gemma Peace, for sharing their story and the stories of Gill (Peter’s wife and Gemma’s mum) and Graham King (Peter’s brother) who both passed away from myeloma in 2016.

This month we held our third Myeloma Infoday in Plymouth. Over 70 patients, their family members and friends attended the day. We received excellent feedback from attendees, showing just how important these kinds of events are for them to learn more about myeloma, its effects and ask questions in a supportive environment. The Myeloma UK Infodays are both informative and inspirational for patients and family members and I highly recommend booking a place if you are able to attend. Infodays take place throughout the year around the UK, with the next Info day taking place in Edinburgh on 9 June. To book your place, click here.

Next month our annual Myeloma Awareness Week will be taking place from 21 – 27 June. This year we are encouraging our supporters to Go Orange and help us raise £50,000 to fund our Myeloma Infoline for another year. The Myeloma Infoline is an important service for those affected by myeloma to speak to someone and receive advice from our Myeloma Information Specialists.

There are a number of things you can do to get involved such as organising a dress down day at work or school, organising an orange themed bake sale or getting local businesses to donate prizes for a raffle.

Thank you to all of our supporters who have already signed up to raise money for Myeloma UK, including 11-year-old Ruby Owen who will be having seven inches of her hair cut off. Ruby has already raised over £2,500 for Myeloma UK and plans to donate her hair to The Little Princess Trust, to make wigs for children who have lost their hair through cancer treatment or other illnesses.

As our 21st Year continues, we will highlight more incredible achievements over the last two decades and continue our commitments to doing the very best we can for those affected by myeloma.

Rosemarie Finley, Chief Executive, Myeloma UK

Best wishes
Rosemarie Finley
Chief Executive
Myeloma UK