Patient information order form

Order physical copies of our patient information publications

All of our patient information publications are available to download from our Information Hub but if you’d like to order free physical copies, please place your order using the form below.

Please note that we are unable to ship outside of the UK.

If you have any questions or would like more information, please feel free to give us a call on 0131 557 3332 or email servicesadmin@myeloma.org.uk.

If you are a healthcare professional looking to order booklets, please use this order form instead.

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You may want to use our healthcare professional version of this form.

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You can find out more about how we use and store your data by viewing our privacy policy on our website.

You can change your mind at any time and we promise to respect your privacy and we will never sell or swap your details. Please see our privacy policy or email us at myelomauk@myeloma.org.uk for more information.

Essentials

Infopack for carers of myeloma patients

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Infopack for newly diagnosed myeloma patients

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Infopack for relapsed and/or refractory myeloma patients

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Infopack for Living Well With Myeloma

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Myeloma An Introduction (temporarily limited stock – maximum one per order, requests above this will be added to waiting list)

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Patient diary

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Planning ahead: An Infopack for myeloma patients

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Patient hints and tips book – The small things that make all the difference

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Easy Read

Easy Read: How is myeloma treated?

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Easy Read: How will myeloma affect me?

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Easy Read: What is myeloma?

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Myeloma treatments and tests

Bendamustine Treatment Guide

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Bortezomib (Velcade) Treatment Guide

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Carfilzomib (Kyprolis®) Treatment Guide

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Cyclophosphamide Treatment Guide

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Dexamethasone Treatment Guide

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Daratumumab Treatment Guide

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High-dose therapy and autologous stem cell transplantation Infoguide

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Isatuximab (Sarclisa®) Treatment Guide

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Ixazomib (Ninlaro®) Treatment Guide

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Lenalidomide (Revlimid®) maintenance Treatment Guide

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Lenalidomide (Revlimid®) Treatment Guide

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Melphalan Treatment Guide

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Panobinostat (Farydak®) Treatment Guide

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Pomalidomide (Imnovid®) Treatment Guide

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Prednisolone Treatment Guide

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Thalidomide Treatment Guide

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Symptoms and complications

Fatigue and myeloma Infoguide (temporarily limited stock – maximum one per order, requests above this will be added to waiting list)

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Myeloma bone disease and bisphosphonates Infoguide (temporarily limited stock – maximum one per order, requests above this will be added to waiting list)

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Living well with myeloma

Kelsey and the Yellow Kite (Children's book about myeloma) (out of stock, request will be added to waiting list)

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AL amyloidosis

AL amyloidosis Your Essential Guide (temporarily limited stock – maximum one per order, requests above this will be added to waiting list)

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Other Related conditions

Monoclonal Gammopathy of Undetermined Significance (MGUS) Infosheet

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MGUS Diary

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Smouldering myeloma Infosheet

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MGCS Infosheet

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Resources to give to your GP

Myeloma Diagnostic Tool (for primary care)

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Myeloma and MGUS: A Guide For GPs (currently out of stock, requests above this will be added to waiting list)

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Email

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Accreditation and memberships

The Association of Medical Research Charities (AMRC) is dedicated to helping medical research charities save and improve lives through research and innovation.

The Helplines Standard is the nationally recognised quality standard which defines and certifies best practice in helpline work.

The Patient Information Forum’s Trusted Information Creator is Europe’s only assessed quality mark for online and printed health information.

The Scottish Fundraising Adjudication Panel is responsible for fundraising standards in Scotland and handles any fundraising complaints related to Scottish registered charities.

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